Something blue...

Charlies eye is going to be made this week!! : )

The last appointment went great. It was a really positive experience for all of us. We are so thankful for that. Once he was sleeping they took out the conformer, measured his eye socket, made an impression and returned the temp. prosthetic (its straight again haha) The measuring was all done by the Ocularist. Charlies head doctor (who removed the eye) also went in and checked the eye socket and looked in every corner of his good eye. She said that every time he comes in they will check his good eye. We like that. We met with the Ocularist first and talked for a few minutes just about making appointments and such. He seems like a doctor we could easily have a long term relationship with. We also met with Charlies head doc again and once again she said his other eye looks perfect. His eye socket healed up perfectly. "I don't worry about Charlie anymore, he has graduated". Beautiful words. We have to go in every 4 months for a full eye exam to check for new growths. Then 6 months and so on. I am glad they don't let the kids go too quickly. It was cute, when Charlie woke up he covered his good eye right away. He said with discust, "that  doctor can never just get it right." He does not quite understand that his "new eye" will never see.

Wednsday and Thursday we go to the ocularists' office two times per day. I don't know what they are doing at each appointment, all I know is that we are coming home with a gorgeous, new blue eyeball. We are so excited. If you would have told me three months ago I would be thrilled over a fake eye, well, ...... : ) 

Adrian is planning for us to sleep over. It is going to be fun! I'll admit, maybe its the girl in me, but I am slightly nervous but very interested about all the eye popping in and out that is going to be happening. In a few months Charlie popping his eye out very normal around here. We have been talking a lot about this new eye and I told him he will be able to take it out. He had this huge smile on him face thinking about that, here we go....

So that is where Charlie is at right now.  Emotionally we have been doing wonderful. We are thankful & have peace.

I will post some before and after pics soon.  : )

Red Eye

I was looking through old pictures again and found the pictures that showed Charlie’s cancer from when he was two years old. I have about 8-10 pictures where its clear. It boggles my mind that I thought nothing of it at the time. I would think in passing “the light is reflecting strange”. Its hard not to feel guilty. Its so obvious. Working on that as well… : )

I thought I would show them … the more people who know what this cancer looks like (in pictures) the better. You can see it when the flash on your camera goes off and “red eye” is produced. Its tricky because I have lots of pictures after these ones were taken and both eyes went red. Must be the angle and the fact that the cancer was just starting maybe? This is the very first one I found showing it.
 (sept. 2009)

(Christmas time, 2009)

Anyways, that’s that. Tomorrow we are headed to SickKids again. Charlie is being put under and having his eye socket measured and a mould made. We are all really excited to be starting the process of making his new eye.

Charlie being four:
He learned how to move his fake eye with his finger. He moves it in front of the mirror and thinks it’s the greatest thing. Then he went and got it stuck in the very far corner. Oh brother. We ask him to fix his eyeball. He sighs and tells us in a longsuffering tone of voice, “Dad…Mom….this eye is only plastic. Its ok.”

Emotionally, last week was hard. I’ll spare you the details, but I am finding that after a big upheaval in your life its hard to just settle down afterwards. Even when the cancer is gone, the feelings stay and its easy to feel lost. It really changes you. One hour I would look at his now very cross-eyed face and laugh and the next I will cry. Poor kid. : ) But it will come. We have so much to be thankful for, and we are.
　
God is good. God is always good.

 
Belinda has been such a blessing. Please pray for Micah & his family, tomorrow is scan day. http://www.belindandken.blogspot.com/2012/01/i-am-thinking-about-scan-day.html