Monday, November 14, 2011

A blog for Charlie


As many of you know there is much concern about our sons eye. I was told that starting a blog to update family and friends about any developments could be helpful. It is comforting to know people will pray for specific needs as they arise. Many people have questions, and we will be honest about what is happening in our little family. I hope no one will think I am jumping the gun by starting a blog. We have appreciated so much all of the e-mails regarding Charlie. Rather than trying to answer all of them, I thought some people would like to have questions answered by this blog.

For those who have not heard, late Saturday evening I became concerned about the sight in Charlie’s left eye. When we covered up his right eye the left eye was not tracking. A call was made to Dr. Bouma and he so kindly took time out of his weekend to look at Charlie's eye. After an examination I was told that Charlie’s left eye is blind and a mass was causing this lost in vision. Dr. Bouma said that there is a very great concern of cancer. Dr. Bouma was able to set up an appointment for Monday at 12. I would like to publicly thank Willem and Joni for caring for us during those unreal moments. We are blessed that when I was told Charlie most likely has cancer I had someone holding me and bringing my son to the great Physician  . Thank you both so much.

Today we saw another Doctor in Brantford. This doctor also confirmed that Charlie is unable to see out of his left eye. He also saw a mass. Initially he gave us more hopeful news that he thought the likelihood of cancer was 50%. We were also told the wonderful news that Charlies right eye looks perfect, which we are thankful for.  After an ultrasound on his bad eye the doctor was not quite so optimistic about the 50% chance of cancer. The ultrasound seemed to indicate the mass was filling the whole eye and showed there could be calcified spots in the mass.

The doctor told us that if his child had Charlie's condition, he personally would not fight to save the eye. Adrian and I had already talked about this and think if it is safer to simply remove his eye we would be fine with that. He may have been blind in that eye for up to two years and we never noticed anything off about him. He would have a normal life with a prosthetic eye.
We will be called in 48 hours with our next appointment which will be to see a pediatric eye surgeon at Mac.

Our largest concern and fear at this point is the question "has cancer gone into his brain".
We are asking for prayers for this specific concern. We are begging God that this tumour/cancer is contained and has not spread. We ask for your prayers.

We are so thankful that God has given us such supportive family, friends and church family. We are overwhelmed with support, it is such a blessing.

I warn you in advance, this blog thing could become therapeutic for me. So don’t be surprised if, along with updates,  many pictures and songs are posted here. : )

Please pray for our Charlie with us.

20 comments:

  1. Thank you for starting this blog Katie. We appreciate knowing details, so we can pray specifically for you all.

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  2. thanks for the update and the blog is a great idea :)..we are bringing your boy to God continually ...and you all...much love xo

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  3. Wow, Katie! Thank you so much for the blog! I am so sorry to hear all of this. May God strengthen you and draw your family nearer to Him and to each other. We are praying for you, and thankful for updates.

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  4. Katie, we on our knees with you and your family and your church, praying for a miracle for Charlie. Our God is able! Thankful that you have the communion of saints to come around you and lift you up, and offer physical support. We have so appreciated our church family as we battle ALS with my dad; it really truly helps! Jehovah Rapha - He is the healer,
    love and prayers
    Joni and Willem

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  5. We are praying for your entire family, and especially for your little man Charlie. The blog is a great tool - specifics to pray for, and answering questions, etc.
    Love,
    Sarah and Goran

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  6. I don't know your family, but I know some of your friends. I pray that if your precious boy has cancer, that it is contained to the mass. May God hold you close and be your strength as you go through these difficult and uncertain days.

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  7. Praying for you guys Katie & Adrian as you go through this trial. Praying for a miracle!

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  8. Thank you for sharing so honestly. We will be remembering you in our prayers!

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  9. Hi Adrian and Katie, you don't know us but our dads were good friends(D.Luiting) We have a Caleb Dirk, so I though oh what a cute name when I saw Charlie Dirk. He sure looks like a Pennings. We will pray for you and Charlie, and especially that it will not go to his brain.

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  10. Keeping Charlie and your entire family in our prayers.

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  11. so glad you started a blog. thought of you and prayed for you all day. begging God for healing and for full restoration of Charlie.

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  12. Adrian & Katie, We are praying you and begging God to heal Charlie. We have let our church family know of Charlie's condition and all of us here at the Chilliwack FRC are praying for you.
    Pastor John & Sue

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  13. Katie and Adrian, we are praying and praying for your sweet Charlie, and of course for you as well. May His grace up hold you and His peace, comfort you. Thank you for taking the time and effort to share.
    Lots of Love,
    Erik and Rachel

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  14. Hi Katie & Adrian. Thanks for posting the blog. We certainly will be praying for Charlie and your family. Wishing you much strength and wisdom. May you be encouraged that people are also praying in Calgary for you. Blessings.

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  15. Dear Katie and Adrian,
    I don't even know what to say. Our hearts break for you and we'll be keeping your family in our prayers, knowing that all things work together for good to those who love the Lord and are called according to His purpose. We're so thankful you rest in the arms of a merciful and good God.
    Love,
    the Vandenbergs

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  16. Praying for your family and that God will give you the strength you need and comfort for every decision and hurdle along the way.
    "Cast all your cares on Him, because He cares for you."

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  17. All the prayer chains in northern Michigan have been activated. Katie, I am so glad you started this blog, so you are able to keep us informed.
    I can tell you, that over the past 6 weeks there is nothing I have found that I cannot do with one eye that I was able to do with two. I am even able to thread my sewing machine needles! Love to all, Aunt Kathy

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  18. Katie,
    Our ladies Bible study group here in Fenwick prayed for Charlie and your family this morning and Gary and I will continue to do so as well. May you know God's comfort and peace especially in the days ahead.
    Love,
    Meredith

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  19. You are so in our thoughts and prayers. Please keep up the Blog so we can keep up with the story of Charlie.
    Love Uncle Tom & Aunt Marge

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  20. What an incredibly difficult path you have so suddenly been thrust on. We will remember you in our prayers daily.

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